When the World Got to Decide If My Son Was Worthy of Living

Yesterday my son walked by my side through the beautiful streets of a downtown square. We had coffee and breakfast outside with friends; we went to a car show and played. When we got home he fed himself dinner and then went outside and played with his grandparents. We cuddled before bed, he gave me kisses and hugs goodnight.

If this is what people want to eradicate, I feel so sad for them. Sad they will live without experiencing the joy and love and happiness that comes with a child like mine. Oliver has made me a better person; he has made me stronger, more open-minded. He has taught me to live each day to the fullest, to never regret, to speak my mind. To never have had the experiences Oliver has given me would be such a loss.

Science is science, they see numbers, they see results, and I applauded the researches that are working to better the world, but the approach of this test is not bettering our world. It is creating fear. It is creating uneducated, biased opinions based on old world doctors harshly shoving diagnoses at scared mothers to be. Science is cold. It’s numbers and data. Numbers and data to not begin to describe my Oliver.

Let women have the choice, give them the option of this test, and let them make their own decisions. But instead of fear give them hope. Instead of a death sentence show them what life will really be like. Let them speak to parents who have been where they are. Let them speak to adults with Down syndrome. Show them the kids that are driving, and going to school, and walking the runway at New York fashion week. The business owners, the creators, the people that are changing our world for the better, and all of them rocking that extra chromosome.

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This article originally appeared at In His Own Time.

Nicole DiGiacomo
Nicole DiGiacomo
Nicole is a 28-year-old mom to the coolest kid around, Oliver, who just so happens to have Down syndrome. She loves to write, talk way too much and hang out with her homie with an extra chromie as much as possible. She has accomplished many things in life, but the best one by far has been to become Oliver’s advocate and be able to give her son a voice. You can follow along at her blog, In His Own Time.

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