He’s 13, But He’s a Vulnerable Child

When my son Jack was about four years old, I lost him in the mall. I was pulling a sweater on over my clothes to see if it would fit, and in the three seconds it took for me to poke my head through the fabric, he was gone.

One minute, he was there, standing right in front of me with his overalls and his sticky hands from the lollipop he’d gotten when we’d stopped at the bank, and the next minute he was nowhere to be found.

When Jack was four, he couldn’t say his own name, but he could start a car.

He didn’t know his phone number, or his address, but he knew how to walk out of the doors and into the wide, open parking lot.

He had autism.

He was gone for about eight minutes. When I say this was the most terrifying eight minutes of my life, I am lying, because the word terrifying doesn’t begin to describe it. My heart was in my ears and I was sweating and I felt like my head might spin off of my shoulders.

I knew he could be anywhere. I knew firsthand the way a silent child could slip under the radar—through the door, and into the sunset. I knew, because I’d seen him do it.

Now Jack is thirteen. He still has autism. This makes him very is vulnerable in ways most people can’t imagine.

For one thing, he can’t talk when he’s under stress. He literally cannot form the words in his brain and make them travel to his mouth and out into the air. He cannot ask for help.

He is a boy who won’t make it out of a burning building unless someone is right there with him. He will not shout that the water is too deep and he can’t touch the bottom, or that a strange person tried to touch him in places no one should touch him.

I worry all the time.

I worry if there’s ever a fire in the grocery store and he’s standing at the Redbox–he stands at the Redbox every single time we go to the grocery store, and even if I’ve warned him we aren’t renting a movie this time, he still likes to push the buttons and search through the new releases—but if he’s standing there while I wait to check out and there’s a fire and I can see him and I can’t get to him, I know he will never get out on his own.

He’ll put his hands over his ears and he will stand completely still, like he’s made of stone. He might scream.

I’m scared one day he’s going to get run over in a parking lot. I have to hold his hand—can you even imagine? A boy taller than me and I have to hold his hand when we walk into a store?

The thing is, he has no concept of cars coming and going. He’s lost to his own thoughts about strawberry frosting and the latest Disney movie and who even knows what else. He assumes someone will always see him.

He’s vulnerable.

He loves popcorn with lots of butter and he says tick-tock-tick-tock whenever I put the blinker on in the car. He sleeps with exactly six pillows.

Every year on December 5th, he goes into the basement and brings up the big red boots we bought at Target, and he puts them in the exact same spot by the fireplace. He does this to remind us about Santa.

He is a teenager. He is so painfully naive, it makes my heart ache.

I’m not saying he’s dumb—not at all. He’s pure, and unguarded, and real. He believes people are good and the earth is round and that cars cost exactly one hundred dollars.

You will never meet another person like him in your life. I guess you could say he’s like a like painting full of color and light—a curious mix of red and blue and green that, at first glance, looks like a big old mess.

Carrie Cariello
Carrie Cariello
Carrie Cariello is the author of What Color Is Monday, How Autism Changed One Family for the Better, and Someone I’m With Has Autism. She lives in Southern New Hampshire with her husband, Joe, and their five children. She is a regular contributor to Autism Spectrum News and has been featured on WordPress, the Huffington Post, and Parents.com. She has a Masters in Public Administration from Rockefeller College and an MBA from Canisius College in New York. At best estimate, she and Joe have changed roughly 16,425 diapers. For more on Carrie, you can follow her at CarrieCariello.com, or find her on Facebook and Twitter.

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