17 Reasons Why It Can Be Hard to Get an Autism Diagnosis

12. Variability in Symptom Presentation

Autism manifests differently in each individual, with a wide range of symptoms and severities. This variability can make it challenging to identify autism, especially in individuals who do not exhibit the more stereotypical behaviors.

Case Study: Olivia

Olivia, a 13-year-old girl, shows strong language skills but struggles with social cues and anxiety. Her teachers and parents attributed her difficulties to shyness and perfectionism until a specialist recognized the less obvious signs of autism.

13. Overlapping Symptoms with Trauma or Mental Health Issues

Symptoms of autism can overlap with those of trauma or other mental health issues, leading to misdiagnosis or underdiagnosis. Clinicians need to carefully differentiate between these conditions to provide accurate diagnoses.

Case Study: Mia

Mia, a 16-year-old girl, experienced trauma in early childhood and was diagnosed with PTSD. Her persistent social communication challenges and repetitive behaviors were initially attributed to trauma, delaying her autism diagnosis until age 17.

14. School and Healthcare Professional Training

The training and awareness levels of school staff and healthcare professionals regarding autism can significantly impact diagnosis. A lack of training can lead to missed signs and delayed referrals for further evaluation.

Case Study: Ryan

Ryan’s preschool teachers noticed his difficulties with transitions and social interactions but lacked the training to recognize these as potential signs of autism. It wasn’t until Ryan entered elementary school that a knowledgeable teacher suggested an evaluation.

15. Socioeconomic Factors

Socioeconomic factors, including access to healthcare, education, and resources, can influence the likelihood of receiving an autism diagnosis. Families with limited resources may face barriers in seeking and obtaining a diagnosis.

Case Study: Isabella

Isabella’s family faced financial constraints and lacked access to healthcare services. Her parents struggled to find affordable evaluations and interventions, delaying her autism diagnosis until age 8 when they received assistance from a nonprofit organization.

16. Changes in Diagnostic Criteria Over Time

The diagnostic criteria for autism have changed over the years, affecting who gets diagnosed. Individuals who might not have met previous criteria may now qualify for a diagnosis, and vice versa.

Case Study: David

David, a 20-year-old college student, exhibited social challenges and repetitive behaviors but was not diagnosed with autism as a child due to the diagnostic criteria at the time. Recent changes in criteria led to his diagnosis during a college counseling session.

17. Personal and Family Coping Strategies

Families often develop coping strategies to manage their kid’s behavior, which can mask the underlying autism. These strategies can delay recognition and diagnosis as the family adapts to their kid’s needs without professional intervention.

Case Study: Lily

Lily’s family developed routines and communication methods that accommodated her needs, masking her social communication difficulties. It wasn’t until Lily struggled significantly in a new school environment at age 9 that her parents sought an evaluation, leading to an autism diagnosis.

Getting a conducive autism diagnosis can be difficult for various reasons, including subtle symptoms, misdiagnosis with other conditions, gender bias, cultural differences, late onset of symptoms, and limited access to specialized services. Understanding these factors can help parents, educators, and healthcare professionals recognize the signs of autism early and seek appropriate evaluations and interventions. Early autism diagnosis and support are crucial for individuals with autism to reach their full potential and improve their quality of life. By raising awareness and addressing the barriers to diagnosis, we can ensure that more individuals with autism receive the understanding and support they need.


Staff Writer
Staff Writer
ForEveryMom staff contributed to this article.

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