How I Wish You Would Respond When Your Child Asks About My Child

*photos by Vick Photography

Luke came out of his bedroom, shoulders shrugged, head down, fireman pajamas on, and filled with feelings of hurt for his little brother.  He noticed that some people were staring at Jack earlier that day.  “I felt like some kids were looking at Jack like he was ‘weird’ or ‘ugly’.”  He went on to explain that he was angry and just wanted to hurt them because of what they were doing.  Oh my mama heart.  Deep breath and respond.

“Well, Luke, you know how you have some friends that have different color skin and/or speak a different language than you? Well, think of someone that had never met somebody with different color skin or heard a different language spoken.  They probably would be interested or curious also. It could be similar with people that haven’t met someone with Down syndrome before, so they may have questions.  Remember what we said about “EVERYBODY MATTERS”?  That we believe everyone was made in the image of God and it doesn’t matter what they look like, the way they talk, the color of their skin, the number of chromosomes they have, they are fearfully and wonderfully made.  All of them matter to God, to their families, and deserve to be loved, valued, and respected.  Each of these people that look at Jack a little longer or make comments, they just don’t know him and ultimately we get a chance to share with them that Jack is a brother, a son, a grandson, a classmate, a teammate, and so many other things just like you and I.  We’re okay with Jack having Down syndrome, so really that’s all that matters.  Same for us, if we remember that all of us are God’s masterpiece created with a purpose, it doesn’t really matter what anyone else thinks of us.  Isn’t it awesome that Jack has reminded us to realize that every person matters and that differences make the world a beautiful place?  We’ve learned a lot from him, huh?”


CarissaCarroll
CarissaCarroll
Carissa Carroll (www.jacksbasket.org) is an educator at the collegiate level and considers her best teaching opportunity to be the three children that call her mom.  Carissa became the founder of an organization called Jack's Basket in 2014, after a year of discovering the amazing joy in the unexpected.  Her middle child, Jack, was diagnosed at birth with Down syndrome.  At his one-year birthday they delivered their first basketcontaining a letter of encouragement, gifts, resources, and support to another family that would receive the same unexpected news they experienced.  After national media exposure and an overwhelming response from others, Jack's Basket celebrates babies born with Down syndrome around the world, providing local, national, and international resources to new and expectant parents.  Jack's Basket recently celebrated their 400th baby and is honored to share that many areas around the world are inspired by the idea and have started this program in their communities.  Carissa also has a mission of bridging the gap between medical professionals and families raising children with Down syndrome by providing up-to-date information on Down syndrome, research based information on how to deliver a diagnosis, and a family's perspective on raising a child with Down syndrome.  Carissa lives in the Twin Cities with her husband Chris, and three children, Luke, Jack, and Taylor.

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